Zachery’s class did a cute little play before lunch yesterday for the parents. Avery was going to wait in the car he didn’t want to be seen with his rash. lol But he came in at the last minute and watched.
Zachery was H hurry we’re hungry we say! I love this age.
We had some pictures taken the other day and I think they came out great.
It was an Avery day, the photographer, Lily Jumper Photography donated her time for this. She is a part of a group, Inspiration through Art that donates pictures for kids with special needs or who are ill. 
I have never asked for anything for Avery before but thought after the year he had I was asking. The boys and dad.
Mom and Avery.
Avery and Zachery
Avery and his family.
And Avery and Sarah!
Ok I feel so much better about the rash this morning. I am sure it’s an allergic reaction. He looks so bad! I kept him home today and his face is bright red. I put some ointment on him they gave him last year in the hospital when he was allergic to the other medicine. So not only is his face bright red, it’s shinny! lol
I have decided that I will pick Zachery up at lunch time and take the boys to McDonald’s for lunch. Since Avery refuses to go into the school like this and I don’t want to leave him alone that long.
I really woke up feeling happy thinking that he’s not in a flair! It was what I was really afraid of, that he would be in a flair and the horror of last year was back. We can deal with an allergic reaction.
So I took Avery to the Dr yesterday for the rash. We stopped the antibiotic and did some blood work. His blood work is all great so that is good! But today the rash is worse. I’m afraid he’s allergic to one of his meds, but which one?
Now he has to miss his field trip tomorrow, he is not happy. I have to call his Rheumy, his old one because we aren’t established with the new one yet. I am going to take him off everything except his steroid in the morning.
I just hate this! Everything goes along so well and then wham, right between the eyes, he’s got a rash.
I just got a phone call from the nurse at Avery’s school. She had called him into the office to give him his antibiotic and noticed a very red rash on his arms. She wanted to know if she should give it to him. So now here I sit waiting for the Dr’s office to open to see what to do. Is he allergic to the antibiotic? Or is this his systemic rash?
That is what I keep thinking as I look at Avery getting ready for prom. This is the fruits of our labor. Last year as I looked at all the prom pictures I admit it, I cried. I wondered if my son would ever have those things; a girl to love, a prom to get ready for, all the things that come so naturally to others.
When Avery was born, we were afraid. We have run the gamut of emotions over the past 17 years. I won’t say it’s been harder than it should have been or even easier. I know that there were time I wondered if he would ever be able to do anything. As he would sit on the floor in Wal-mart refusing to get up or walk, I would ask myself how will he ever be able to take care of himself or do anything.
Tonight my son is getting ready for prom and I cry when I think of it. Every ARD meeting where I insisted he be given the opportunities of the other kids, where I insisted he be a part of his community is coming to fruition tonight. Every moment when I wondered if he would ever get past this stage or that and if he would ever grow up has paid off.
When Avery was born and they told us he might have Down syndrome I cried. I cried for him and for the things he would miss but I also cried for myself and the things I would miss. I cried for the grandchildren I would not have, I cried because I wondered if he would grow up and have someone who loved him.
Tonight I cry tears of joy and love. My son is going to his Junior Prom with the sweetest girl. The sweetest girl who loves him, and thinks he’s hot. The sweetest girl who makes him smile and do a little hurray jump when he walks because she loves him and he loves her. And all the things I worried about, all the times I wondered if he would ever grow up are memories. And I carry in my heart the knowledge that he will do it. He will do the things he wants. He will fulfill his dreams and hopes and life is good.
.jpg)
