Avery went back to school today for an hour and a half. He cried he was in pain. This about killed me. The whole time he has been sick he has barely mentioned he hurt. So for him to cry, he was in a lot of pain.
Tomorrow I am going to give him tylenol before school and see if that helps. I hear mornings are bad. He come home and took a nap and felt better. A hot bath also helped.
I am afraid that the return of the pain and rash is a sign he’s not doing ok on the dose of prednisone he is on. He has to be able to maintain for four weeks to qualify for that study.
It is in God’s hands. I know this. But God it would be a little easier if you let me fix it.