It seems like we are always waiting. Today is Friday and we are waiting on Avery’s new medicine to be delivered to the hospital. We have a lot of hope in this very expensive medicine.
The Dr’s told me yesterday it won’t work as fast as the Anakinra, it might take a month. We might also have to have a couple more pulse therapies in the mean time. I can deal with that, it’s way easier if we know we might have to go back to the hospital for three days than to be surprised.
The medicine should be here by fedex by 11:00 am. I have 3 hours to wait.