As hard as it is, I am not asking Avery if he is in pain or if he hurts all the time. We are three days out from the last pulse therapy and loading dose of Rilonacept and still pretty much pain and rash free.
He is sore in the evenings and still can’t walk at Walmart but some of that is cardio. He is getting his strength back, so that is wonderful. He’s still having stupid sweats, I know because he’ll yelling about that now. And we now have the red hands and crazy pealing going on.