Tomorrow we go to the Rheumatology clinic as an out patient for the first time. I was told to bring a bag in case we have to be admitted. I have been doing laundry and cleaning house incase Avery and I don’t come home after the appointment.
My cousin Laura keeps a hospital bag packed. Her son Alex has frequent admission. Laura I don’t want a hospital bag on standby! But I am going to pack one and hope I don’t have to use it. I even bought some hospital clothes at Family Dollar yesterday.
I wish I could look at him and know what was going on inside his body. I wish I could run labs at home. I wish it was 5 weeks ago and my son was health and we had never heard of systemic onset juvenile rheumatoid arthritis.